As the new president of the International Association of Sickle Cell Nurses and Professional Associates/IASCNAPA, Dr. Dora Clayton-Jones, an assistant professor and Arthur J. Schmitt Leadership Fellow at the Marquette University College of Nursing, will dedicate her tenure as president to increase awareness of sickle cell disease (SCD) while elevating patient care and advocacy. She explains, “Gene therapy is being developed. But remedies like bone marrow transplants aren’t widely available. So, we still have work to do in finding a cure and on the psychosocial level.”
By Dana World Patterson and Krislyn World
Our memories begin where love abides since Mom, Gloria World, said that we were conceived in love. And throughout our lives, that’s all we have known from each of you.
That’s us, Dane-Dane and Krissy. Our formative years were special and made us who we are today — courageous, confident, well traveled, with Floridian roots, lovers of fine things, and discerning. We love you deeply and hold you in the highest esteem —Hosie World, Jr., a tall, handsome, impeccably dressed man who loved his girls. You always saw the best in us, and we did no wrong in your eyes. You were a man of few words. But we knew that you meant what you said.
DeNaire Washington, the oldest son who is recovering from what he calls a freak accident that left him hospitalized for months, sings his mother’s praise. “Mom has always put herself on the back burner for my brothers and me. When we were growing up, she was at all of our activities. Although she sacrificed for us so we could have the best; there were still house rules, and we had chores. Mom taught me to have respect, to show love, and values. She is a phenomenal woman. The relationship that I have with her is a blessing. I like women who are smart like my mom.”